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Feb 09, 2010 - 03:07 AM  
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Topic: New progressive leadership needed for CFS at CDC

Posted by: Anonymous on Tuesday, September 29, 2009 - 12:00 AM Print article Printer-friendly page  Email to a friend Send this story to someone
CDC Organization
Calls for new progressive leadership in CDC's Chronic Fatigue Syndrome (CFS) program and a more appropriate location in the CDC organization, as well as concerns about use of CDC funds for CFS.

The HHS Scientific Advisory Committee for Chronic Fatigue Syndrome and the International Association for CFS/ME have formally recommended a change of leadership at the CDC that can achieve efficient meaningful progress in CFS research, clinical care and education. They recommend "that the CDC needs to identify a CFS program leader who is a progressive, open-minded, and dynamic manager with a sense of urgency commensurate with the pressing needs of the CFS community." Based on estimates of increasing prevalence and the poor track record after 25 years of effort, the IACFS/ME is highly critical of the proposed 5 year strategic plan and urges that the CFS program be relocated to the National Center for Chronic Disease Prevention and Health Promotion which "contains the necessary expertise and leadership critical to establishing interventions to detect, control and prevent CFS."

Also at issue is the possible misuse of funds. Formally testifying before the CFSAC, Kim McCleary, President and CEO of the CFIDS Association of America, detailed concerns about the management of CDC funds allocated for CFS research.

Minutes of the DHHS Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, October 2008

Testimony of Kim Mcleary
October 2008

CFSAC recommendations,
May 2009

IACFS/ME's recommendations
on CDC's 5 Year Strategic Plan for CFS Research, July 2009

11/2 UPDATE - Looks like the CDC’s chronic fatigue syndrome research group, led by Dr. William C. Reeves, may have some ’splaining to do in Washington. A possible research breakthrough - the discovery of a correlation between CFS and a retrovirus related to the AIDS virus - has fired up the medical community in recent weeks. "This is going to create an avalanche of subsequent studies," Dr. William Schaffner, an infectious disease expert at Vanderbilt University, told the New York Times this month. But will the Centers for Disease Control and Prevention play a role in that research? It hasn’t so far.

Read the Atlanta Unfiltered article
Officials Advocates: Where was CDC for milestone in chronic fatigue syndrome research?

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